Patient Education Liaison

Overview

Why Sarepta? Why Now? The promise of genetic medicine has arrived, and Sarepta is at the forefront. We hold a leadership position in Duchenne muscular dystrophy (Duchenne) and are building a robust portfolio of programs across muscle, central nervous system, and cardiac diseases. In 2023, we launched our fourth therapy and the first ever gene therapy to treat Duchenne. We’re looking for people who see unlimited potential in themselves and who are motivated by an unwavering commitment to patients.

The Importance of the Role Reporting to the Executive Director, Patient Engagement Liaisons, the Patient Engagement Liaison (PEL) will serve as the primary point of contact for families during the treatment discovery phase for Elevidys, providing clear, compassionate education to support informed treatment discussions with their care team. As a PEL your role involves supporting patients and caregivers interested in learning about a treatment option for Duchenne Muscular Dystrophy (DMD).

This field-based position provides educational assistance to patients and caregivers considering or undergoing therapy. Key responsibilities include supporting the Duchenne community at events, collaborating with patients, families, and serving as a trusted, educational resource for patients and caregivers during the treatment consideration phase. This role is dedicated to providing an educational forum for families to learn more about Elevidys, helping them understand the therapy, available educational resources, and the broader support ecosystem.

The PEL acts as a bridge between the patient community and Sarepta, ensuring families receive accurate, compassionate, and timely information to support informed decision-making. As a PEL you will work with various internal teams to meet local territory needs.

The Opportunity to Make a Difference

• Provide education and ongoing support to patients, caregivers, and the DMD community including Elevidys product information, dosing and administration, and other needed education
• Connect patients and caregivers to relevant support programs, advocacy and community organizations
• Help families navigate available options and understand next steps in their pre-treatment journey
• Be accessible to address the questions of Caregivers and Patients
• Create awareness and educate through local advocacy and programming, including coordinating patient programs and education at conferences
• Respond promptly to patient and caregiver questions and concerns, providing resources to resolve issues, while ensuring compliance with HIPAA and patient privacy policies
• Relay insights from the patient and caregiver community to internal stakeholders to help improve education and support programs

More About You

• Bachelor’s degree plus 10 years of experience in healthcare, life sciences, social work, public health, or a related field
• 3+ years of field-based experience in patient advocacy, patient support, healthcare education, or a related role
• Experience directly supporting patients is required
• Ability to speak empathetically and connect with patients and families facing challenging medical diagnoses
• Strong communication skills including public speaking and presentation experience
• Ability to explain complex information clearly and compassionately
• Demonstrated ability to effectively collaborate with case managers and account managers, handle difficult patient cases, and respond promptly to patients
• Overnight travel may be required. This position requires significant driving of either a company-provided or personal vehicle as well as prolonged periods of sitting, both of which are part of the essential duties and responsibilities of the role. This position will require approximately 20-50% travel, including some overnights and weekends.

Preferred

• Experience in neuromuscular diseases, rare diseases or gene therapy
• Bi-lingual English/Spanish preferred
• Experience working with patient advocacy organizations

What Now? We’re always looking for solution-oriented, critical thinkers. So, if you’re comfortable with ambiguity and candor, relish challenging yourself, and place kindness and integrity at the forefront of how you approach…