Advocacy Relations Senior Manager - Rare Disease

Overview

Join Amgen's Mission of Serving Patients. At Amgen, if you feel like you're part of something bigger, it's because you are. Our shared mission to serve patients living with serious illnesses drives all that we do. Since 1980, we've helped pioneer the world of biotech in our fight against the world's toughest diseases. With our focus on four therapeutic areas — Oncology, Inflammation, General Medicine, and Rare Disease — we reach millions of patients each year.

As a member of the Amgen team, you'll help make a lasting impact on the lives of patients as we research, manufacture, and deliver innovative medicines to help people live longer, fuller, happier lives. Our award-winning culture is collaborative, innovative, and science-based. If you have a passion for challenges and the opportunities that lie within them, you'll thrive as part of the Amgen team.

Join us and transform the lives of patients while transforming your career.

In this vital role you will primarily drive patient advocacy efforts in the Immunoglobulin G4-related disease (IgG4-RD) and ANCA Associated Vasculitis communities.

• Serve as a key contributor to Amgen's U.S. Advocacy strategy and execution for IgG4-RD Disease and ANCA Associated Vasculitis, including strategic programming, awareness month activations, patient events and national and/or local engagement opportunities with the advocacy community.
• Serve as primary relationship manager to IgG4-RD Disease and ANCA Associated Vasculitis related patient groups, cultivating high-trust, compliant partnerships based on shared goals in awareness, education, and access.
• Collaborates cross-functionally with medical, marketing, government affairs and alliance management, and communication teams to drive critical insights and amplify patient voices in shaping access and reimbursement strategies.
• Represents Amgen in relevant coalitions and forums to elevate the patient community's voice and needs.
• Drives high-quality initiatives and shared goals to empower patients to take a more active role in treatment decision-making with their HCPs.
• Lead identification and support of patients and caregivers in sharing their experiences, ensuring these stories inform external and internal initiatives.
• Proactively identify emerging trends, issues, and community needs related to rheumatology, gastroenterology and nephrology ecosystems, and formulate timely, collaborative responses.
• Support awareness, education, and empowerment efforts across the patient and caregiver communities.
• Translate patient and caregiver insights into actionable strategies that inform cross-functional decisions, advancing patient-centered approaches across the product lifecycle.
• Create and execute collaboration plans with advocacy groups on mutually aligned goals, including public health and clinical education campaigns.
• Organize patient feedback mechanisms to ensure ongoing alignment with advocacy and overall business priorities.
• Travel up to 40% as needed, to engage in internal meetings, advocacy meetings, and conferences.

We are all different, yet we all use our unique contributions to serve patients. The patient advocacy professional we seek is an individual with these qualifications.

• Doctorate degree and 2 years of patient advocacy experience
• Or Masters degree and 4 years of patient advocacy experience
• Or Bachelors degree and 6 years of patient advocacy experience
• Or Associates degree and 10 years of patient advocacy experience
• Or High school diploma / GED and 12 years of patient advocacy experience.

• Previous experience developing and leading patient advocacy engagement strategies for rare, rheumatic and sever inflammatory conditions.
• Previous academic/CRO/pharmaceutical/biotech experience; rare disease experience a plus
• Experience building community in an emerging disease state that lacks robust patient support.
• Contribute to the development of the patient advocacy strategic plan that is aligned with the company philosophy on patient advocacy engagement.
• Experience working with community-based organizations, a plus.
• Experience working with multiple…