Patient Advocacy Partnerships Coordinator

WE ARE RARE Bionews is home to more than 50 rare disease news sites and patient communities, and more than half of our employees are people living with or caring for someone with a rare or chronic condition. We’re expanding our Patient Advocacy Group (PAG) Partnerships Team, one of the most essential engines of our organization. We’re looking for a Patient Advocacy Partnerships Manager who can build trusted relationships, orchestrate complex programs that help elevate Advocacy visibility, and interact with cross-functional work streams to deliver high-quality work and excellent outcomes.

If you’re someone who loves the creativity and momentum of agency life with the sense of purpose that comes from helping people living with rare conditions and the advocacy community, this role offers the best of both worlds: meaningful work, real impact, and balance.

Fully Remote, US based.

• Serve as day-to-day contact as part of a team that is managing a portfolio of Patient Advocacy Organizations across multiple rare and chronic disease communities.
• Build strong, empathetic, professional relationships rooted in consistency and collaboration that sustain strategic business growth.
• Understand each partner’s mission, priorities, news, initiatives and sensitivities and tailor interactions accordingly.
• Maintain detailed relationship notes and ongoing awareness of PAGs interests and needs to enable proactive conversations and unearth new partnership opportunities.
• Attend 3-5 advocacy meetings per year to connect with partners and community members, market Bionews offerings to target audiences.

• Coordinate with and manage cross-functional projects across Editorial, Content, Social Media, Client Services, and Sales teams.
• Partner closely with internal teams to move content through the pipeline, support social collaborations, and facilitate other PAG content collaborations.
• Support planning and execution of activities to support Bionews presence at advocacy events and conferences.
• Own timelines, assets, and status tracking to ensure all elements of PAG agreements are delivered accurately and on schedule.
• Maintain rigor around contracts, calendars, updates, and documentation.

• Understand how partner activities support broader business goals, including audience growth and long-term partnership value.
  
  Conduct in-depth research to identify opportunities with new and existing advocacy organizations.

• 3–5 years in health communications, digital health, patient advocacy, or agency account work.
• Strong writing and research skills.
• Clear, respectful communicator who can work with patient advocates, nonprofit leaders, caregivers, and internal teams.
• Strong project management instincts.
• Experience coordinating with editorial, content, social, or sales in a healthcare setting.
• Comfort with digital platforms, newsletters, social media, and CMS environments.
• Understanding of advocacy tone, patient behaviors, and rare disease sensitivities.
• Team-first mindset.

• Experience working with PAGs to execute educational initiatives, sponsor ships or other programs.
• Familiarity with Monday, Jira and other project management platforms.
• Knowledge of Google Workspace/Microsoft Teams.
• Experience with Canva.
• Knowledge of specific rare diseases, including lived experience.
• Prior exposure to conference planning or editorial operations.

• Mission-driven work with tangible impact; collaborative, inclusive culture.
• Medical, dental, vision.
• Unlimited vacation.