Clinical Nurse Specialist in Inherited White Matter Disease

Clinical Nurse Specialist in Inherited White Matter Disease

The closing date is 20 March 2026

At University College London Hospitals NHS Foundation Trust (UCLH), our success starts with you. We have a reputation as a centre of clinical excellence. An exciting opportunity has arisen for a 0.5 FTE Band 7 Clinical Nurse Specialist to join our highly specialist Inherited White Matter Disease service based at the National Hospital for Neurology and Neurosurgery. The Inherited White Matter Disorders (IWMD) Highly Specialist Service (HSS) is a new service funded by NHS England which aims to improve diagnosis and treatment of patients with inherited white matter disorders.

These are a group of rare genetic conditions that can develop at any age, from childhood to adulthood, with a range of symptoms including memory and balance problems, weakness, spasticity, continence problems and seizures. Some patients may also be affected by hearing or visual problems. The treatment of most IWMDs is symptom based and supportive, however a number of exciting clinical trials for disease‑modifying treatments are on the horizon.

The post holder will take a major role in supporting the delivery and development of UCLH's IWMD service. The post holder will work closely with all multi‑disciplinary team members and will play an important role in the continued development and delivery of high quality care, support and management for people and families. Appropriate NMC registration is required. Applicants must have a special interest and at least some relevant clinical experience in this area.

We are committed to ensuring that no job applicant or employee receives less favourable treatment on the grounds of age, disability, gender reassignment, marriage or civil partnership, pregnancy or maternity, race, religion or belief, sex or sexual orientation or is disadvantaged by requirements that cannot be justified.

We offer our permanent staff an interest‑free season ticket loan for travel, a subsidised social club including gym, free independent and confidential support for all staff, large retail discounts, cycle‑to‑work scheme and on‑site accommodation to name a few. For more information on our staff benefits please see attached poster.

We are also members of which offers discounts on high street retail stores, offers on travel deals, and also to take advantage of cash‑back schemes.

Please note that all correspondence regarding your application will be via email. The emails will be sent to you via TRAC.jobs and not via NHS Jobs, we encourage you to check your inbox regularly. Please note that if you have not heard from us within 3 weeks of the closing date of the advert you should assume that you have not been shortlisted on this occasion.

University College London Hospitals NHS Foundation Trust (UCLH) is one of the most complex NHS trusts in the UK, serving a large and diverse population. We provide academically led acute and specialist services, to people from the local area, from throughout the United Kingdom and overseas. Our vision is to deliver top‑quality patient care, excellent education, and world‑class research.

• University College Hospital (incorporating the Elizabeth Garrett Anderson Wing)
• National Hospital for Neurology and Neurosurgery
• Royal National ENT and Eastman Dental Hospitals
• University College Hospital Grafton Way Building
• Royal London Hospital for Integrated Medicine
• University College Hospital Macmillan Cancer Centre
• The Hospital for Tropical Diseases
• University College Hospital at Westmoreland Street

For the full Person Specification and more information regarding the main responsibilities of this role, please refer to the attached Job Description.

Come and be a part of the best NHS trust in England to work for, according to our staff*.

* UCLH top trust to work at in England - In the most recent NHS staff survey UCLH had the highest percentage of staff who said they would recommend us as a place to work, out of all general acute or acute/community NHS trusts in England for the third year in a row.

To find out more about flexible working, visit:
Flexible working
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To discover more about what makes UCLH a great place…