Policy and External Communications Senior Officer

The Multiple System Atrophy Trust (MSA Trust) is the UK and Eire’s leading national charity offering vital support to people affected by MSA – a terminal neurodegenerative disease.

To lead on the Trust’s Policy and Communications work. To ensure our strategy and work in this area is led by the specific needs of people affected by MSA. This will require effective contact between the Trust and people affected by MSA, a range of health and care professionals; in order to develop their engagement in a professional and supportive way.

To be an ambassador for change in wider society, working in the best interests of people affected by MSA. To develop and ensure effective external communications and dialogue with people affected by MSA and facilitate positive collaboration with other relevant agencies and policymakers. To co-ordinate marketing and clear messaging to key stakeholders.

To promote the development of this element of work within the MSA Trust, which may include future line management responsibility as the work develops.

• Work with the CEO, internal teams, Services Committee, and other colleagues to set and deliver an integrated Policy and External Communications strategy for the MSA Trust.
• Be responsible for the development and delivery of an operational plan with targets and be accountable for the budget in this area.
• Lead on policy and campaigning work, ensuring priorities reflect the views of people with MSA.
• Be responsible for the Trust’s external communications and messaging.
• Be responsible for ensuring that the development and output of our communications and policy work are inclusive and reflect the diversity of our MSA community.
• Play a key role in the development and effectiveness of national and local voluntary networks that support shared ambitions for the neurology sector.
• Play a key role in the production of MSA News – the Trust’s flagship publication for members.
• Work closely with colleagues to ensure our services are compliant with relevant policies, procedures and relevant legislative frameworks.
• Create positive relationships with MSA Trust colleagues, Trustees, and external networks to share knowledge, insight and evidence.

• Undertake any other duties commensurate with the level of the role.
• Embrace diversity and share in the MSA Trust’s commitment to equality of opportunity and to eliminating discrimination.
• Work closely with the Fundraising Team to build fundable propositions and build relationships with supporters.
• Use the charity’s resources efficiently and effectively to ensure that our financial resources are demonstrably used for the benefit of our service users.
• Ensure that information is obtained, used and stored in accordance with our Data Protection and Confidentiality policies.
• Maintain compliance and adherence with all processes to ensure good governance.
• Develop a deep understanding of the issues facing people affected by MSA across the UK and Ireland, including the Health, Social Care and Welfare landscape.

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. Please ensure in your covering letter you mention any dates you might not be available for interview.

We welcome applications from all backgrounds and are committed to equality, diversity, and inclusion.

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