Lead Nurse Child and Adolescent Epilepsy Service

Go back University Hospitals of Leicester NHS Trust

The closing date is 01 February 2026

This is an incredibly exciting opportunity to be part of rapidly expanding team thanks to a pilot program from the local ICB. This is a rare chance to be part of a developing service that will provide accessible and efficient care to the Children and Young people with epilepsy.

As a strong clinical leader this role will lead on the strategic development and commissioning of clinical networks, provide patient-focused care and create a collaborative approach with the multi-disciplinary teams.

The successful candidate will lead and support an experienced team by providing supervision to allow them to develop their interests in the area.

• As a strong clinical leader the post holder will be required to implement and develop a service that is, easily identifiable, highly visible and accessible to patients, carers and staff.
• This role will be accountable for the efficient and effective management of the Children's & Young Peoples Epilepsy Service across Leicester, Leicestershire & Rutland (LLR).
• This post will lead on the strategic development and commissioning of the clinical networks, provide clinical leadership, drive patient-focused care and create a collaborative approach with the multi-disciplinary teams.
• Act as clinical lead & manager for the Paediatric Epilepsy nursing team. This will include managing sickness absence, appraisal & training, ensuring that all aspects of performance, attendance, training and appraisal are addressed in accordance with Trust Policy.
• Act as a recognised expert in the field of epilepsy nursing and provide professional leadership in all areas of practice in supporting colleagues to promote excellence in care.
• The post holder will analyse the impact of the Epilepsy Nurse Specialist across LLR their systems, processes, roles and responsibilities to identify change opportunities and recommend actions.
• Liaise with ward staff offering placements to students and insight visits to newly appointed staff.

Our new strategy, developed with the support and feedback of colleagues, patients, and partners, is our compass for the next seven years ).

We have four primary goals:

• high-quality care for all,
• being a great place to work,
• partnerships for impact, and
• research and education excellence

And we will embed health equality in all we do - taking active steps to reduce the avoidable differences in healthcare that some people face, working in partnership with communities.

Our strategy is underpinned by new values and we will work to ensure they are an everyday reality for all:

• we are compassionate,
• we are proud,
• we are inclusive, and
• we are one team

This is an exciting moment as we look to the future with clarity on what we already do well and where we need to focus our energies to make an even bigger difference for the people we serve.

About the University Hospitals of Leicester NHS Trust:

• Maintain clinical experience and provide expertise in the specialist area of Paediatric Epilepsy care to patients, families and professionals.
• Liaise with Leicestershire Education and Effectiveness Partnership (LEEP
  1) to coordinate training for schools in CYP epilepsy including use of emergency medications and support development of epilepsy champions in schools.
• To provide a nurse-led review clinic to offer additional support to families/carers and consultant team.
• To lead the development of a working partnership with the Learning disability and Autism (LDA) collaborative of LLR ICB and plan for 6 joint clinics (alternate months) per year with specialist LD nurses.
• In collaboration with paediatric education leads, develop dedicated training specific to the Network and ensure a development training programme is in place for nurses and other professionals who may care for children requiring Paediatric Epilepsy Services.
• Develop dedicated guidance, SOPs and protocols in the Paediatric Epilepsy Service as relevant to the development of the Network.
• In conjunction with the wider Epilepsy Nurse Specialist team, work to ensure that transitions in care, for example, between childrens and adult services, are as seamless as possible and that information to support the experience of the whole transition process is accurate and readily available.
• Provide support to patients, their families and professionals around end of life care and unexpected death, working closely with the childrens and adult palliative care services. In particular, work to ensure a consistency of approach and management of expectations for this sometimes very unwell patient group.
• Work with parent/patient representatives and other health personnel to improve patients and families experience throughout their journey.
• Provide advice and clinical support during investigations into specific patient complaints where appropriate.
• Independently prescribe clinically relevant medication for…