Haematology Clinical Nurse

Role Overview

To support the service dedicated to the care of children and young people with major haemoglobinopathies and other long term non‑malignant haematological condition.

• Work with the network multidisciplinary team to provide expert clinical care and management for children with major haemoglobinopathies, and their families and carers. Ensure care recognises not only individual medical needs but also their social and developmental needs.
• Expected to play an active role in continuing to develop safe and effective network services, and assist in designing patient pathways to ensure optimal care in the best environment.
• With the rest of the clinical team, ensure the national peer review standards for haemoglobin disorders are met and maintained.
• Play an active role in the day‑to‑day care of patients with haemoglobin disorders and other non‑malignant haematological disorders, run independent clinic assessments and provide expert advice to non‑specialists.
• Clinical Care Management:
  Administer specialised treatments such as regular blood transfusions and monitor for adverse reactions; provide care during outpatient visits, hospital stays, and in the community.
• Case Coordination:
  Act as a central contact point for families to navigate complex care, reduce and sometimes avoid hospital admissions.
• Education and Training:
  Provide comprehensive education to children, families, and schools about the condition, treatment, and self‑management; develop educational programmes for staff.
• Holistic Support:
  Address the emotional, psychological, and practical needs of the child and family, offering support to reduce feelings of being overwhelmed.
• Multidisciplinary Team (MDT) Working:
  Collaborate closely with consultants, community teams, and specialists to develop and implement care plans.
• Service Development:
  Develop nursing protocols, patient information documents, and maintain databases.
• Transition Care:
  Support adolescents as they transition to adult services.

St George’s, Epsom and St Helier University Hospitals and Health Group cares for a population of four million people in South West London and North East Surrey. Our sites include St George’s Hospital, one of 11 major trauma centres in the UK and the largest healthcare provider and major teaching hospital in the area;
St Helier Hospital, home to the South West Thames Renal and Transplantation Unit and Queen Mary’s Hospital for Children; and Epsom Hospital, home to the South West London Elective Orthopaedic Centre (SWLEOC). After years of collaboration, our two Trusts became a hospitals group in 2021. While remaining as two separate Trusts, being a hospitals group will help us to collaborate more closely on research, and the development, education, and training of our 17,000‑strong workforce.

At Gesh we are committed to supporting flexible working arrangements. Applicants are encouraged to discuss any flexibility they may need during the recruitment process.

The post is supported by Roald Dahl’s Marvellous Children’s Charity, bringing its experience in supporting nurses looking after children with long‑term health conditions. As a Roald Dahl nurse the post holder will network with other Roald Dahl non‑malignant haematology nurses, receive support for professional development and attend the annual Roald Dahl nursing conference.

The nurse will work as part of the team in providing patient reviews, school liaison and education, patient and family community support, GP support, and establishing a robust nursing education programme. They will support protocol and patient information development, develop nursing documents to support the care and management of patients, and develop and maintain patient databases. The CNS will work closely with children attending day care or admitted as inpatients and act as the key worker for transition from paediatric to adult services.