PR neurodivergent charity - Volunteer

Public Relations (PR) Volunteer

We are looking for a PR volunteer to support the team  advocate and support people with hypermobility, related conditions, and neurodivergent individuals, offering resources and promoting awareness.

By sharing your expertise you help us support the neurodivergent community. Join us today!

• Experience in a PR role – building relationships with the media and understanding journalists' operations.
• Excellent written English and the ability to write to media standards and conventions.
• Self‑motivated, proactive and reliable, using your initiative to make things happen.
• Passion for our vision at SEDSConnective.

• Build and maintain relationships with journalists and key media.
• Develop a media contacts database using desk research and free tools.
• Create media hooks and talking points.
• Monitor coverage opportunities with your own or free PR tools and software.
• Monitor the fundraising industry to generate fresh PR stories and identify trends.
• Assist with writing press releases issued by the charity.
• Manage the approval process for all press releases.
• Maintain and update media lists and contact databases.
• Identify and secure speaker opportunities for our founder.
• Work closely with trustees to identify new opportunities and increase donations.
• Produce branding materials and key information for media distribution.
• Help grow our social media presence and collaborate with the marketing team.
• Support online blogs.
• Maintain a calendar of opportunities in partnership with Communications and PR Lead.
• Work 3–7 hours per week, either in or out of office hours.
• This role is completely remote.

We actively support people with Hypermobility, Ehlers‑Danlos syndromes, Hypermobility Spectrum Disorders, and related conditions such as POTS, Fibromyalgia, ME/CFS, IBS, and more. We also support neuro‑divergent people, including autistic individuals and those with ADHD, as well as their families and carers. Our award‑winning advocacy is key and unique in a mission‑driven environment.

• A chance to make a meaningful difference in a growing, inclusive charity.
• Flexible, fully remote volunteering.
• Supportive and collaborative team culture.
• Opportunities for personal development and skill‑building in a mission‑driven environment.